Two down two to go!

August 4th

Another Glorious Day on Hampstead Heath.  Or as I call it my Green Prozac, although it is not so green at the moment.

Let’s go back to Tuesday, round 2 of Chemo.  Marc and Doramy, my brother and sister in law came with me and were great, kept me occupied and entertained.   Doramy brought me two books about how to tie head scarves and Marc became our model, which entertained the staff and at least one other visitor, who kept leaning over to see what we were up to.   And this what we were up to!

Back to the Chemo, without doing the Cold Cap it was a doddle.  It all takes time but really there is nothing to it.  I sit in my rather lovely recliner chair, make myself comfortable, give my order of coffee and croissant to the catering lady as do Marc and Doramy and the infusions begin.   I am going to list what exactly happens but you can skip this bit if you are not interested.

On arriving, the first thing they do is put a needle into the port on my RHS with a cannula in it.  They then draw out a syringe  of bloody, clearing the tube out before taking two viles of  blood out to be tested to check my levels.  Thankfully the results came back and my level was 1.3…… Thank god for that as it meant we could then begin the Chemo.  Now I am going to list all the infusions that take place…..

1.Saline infusion

2. Steroid infusion

3. Saline infusion

4. Drug “A” Chemo infusion.  This arrives as a large syringe with a red liquid in it that has to be infused by hand slowly over 15 mins.

5. Another saline  infusion

6. Drug “C” Chemo infusion.  This one just goes in through the port like all the others

7. Another Saline infusion

8. Finally 5ml of heparin is put into the port that stays in the line so that I don’t get any clots.  The heparin does  not go into my blood.   That’s it, that is what is entailed in my Chemo.

Although you would think having chemo is a scary thing, you know what, it isn’t.  It doesn’t hurt, have any sensation as it goes in and I am unaware of it happening.  It just takes about 3 and a half hours so company is a good thing.  I am very lucky I feel.

That all done it’s off to lunch at The Ivy Cafe in St Johns Wood.  That was Tuesday, all done and dusted.

Now lets talk hair and head wear.  With the help of Marc and Doramy I feel I have got my head around what I am going to do once all my hair has gone.  I have plain scarves and have purchased some amazing artificial flowers which I am going to make into brooches and have a floral look going.  As with the short hair cut, when it comes to seeing me with my new head gear on, as my mother taught us. If you can’t say anything nice please don’t say anything at all.  I don’t want to be referred to as other people or labled as something.  It’s just me making a statement and making the most of a situation most of us wouldn’t expect to be in.

I have now come to terms with having short hair and it falling out, and am at the stage now where it’s going to have to be shaved off.  I am fed up of finding it everywhere, even in my “Love Island” water bottle this week, in the bath, on the floor, on the table cloth and the worst of all is waking in the night with a mouth full from the pillow.  Every stage takes getting used to but you do get used to it and from that one there is always another one to get used to.  In some ways in this heat shaving my head might be rather nice but who do I let do it…….???????  Let’s not forget the plus side of hair loss and yes there are a few, armpit hair has gone so no shaving there for a while and those whiskers one gets when you hit a certain age on your chin have gone, now that really is a bonus.

I have said it before but I really can’t say it enough THANK YOUs to everyone for their kind words, cards, gifts, food and general love for us all.  The gifts and cards and food that keeps on coming really do keep my spirits up and on the odd day where I feel lonely reminds me you are all out there rooting for me.  I LOVE YOU ALL.

Glorious Day Badge latest photo, Costa Rica.

When there are large gaps in my posts it’s not that I don’t want to write it’s just the tiredness gets to me and my head space  is just not there for it.

Thank you all for following till next time have a great week end and enjoy the sunshine. Xxxxxx