This was the view i was greeted with at 6.53am this morning. Fingers crossed it’s a Glorious Day.
So February is almost ove and i am still feeling really good. Energy levels still up there, mind getting clearer, weight slowly dropping, and last year is becoming a distant memory. Saying that though, in a weird way I feel…I don’t know how to explain it without it sounding strange, something is missing. And I’m not talking about my boobies. I got to meet so many new lovely people and a lot of them I saw on numerous occasions, becoming friends with them and now I don’t see them anymore and there’s a gap. It suddenly occurs to me what I am feeling. It’s like being made resundant/loosing a job. Suddenly I don’t see these lovely people anymore and I miss them. Battling breast cancer was my job. I guess I got a bonus when made resundant, I’m cancer free!
I have been re reading my blogs and looking back at it it astounds me how busy I was with appointments, what a rollercoaster of emotions and pains I had and how amazing family and friends were getting me through it. It was a crazy busy time that is now over and normality has returned. Thank god for normal.
Memory foam
It is almost 10 months ago that I had my operation. In that time I spent the first 8 weeks only being able to lie on my back to sleep because of the pain from the scars and ports, plus I was told I had to so everything could have time to heal. Then slowly over the weeks I began to roll onto my sides a few degrees at a time. Although at the time it was frustrating and seemed to take forever there was a point that one day I suddenly realised I was sleeping on my side again and it wasn’t painful anymore. This was a triumph. Until you are unable to sleep in the position that you normally do every night you don’t realise what that position is and how comfortable and instinctive it is.
Now this sounds all fabulous that I could finally sleep on my side and get some proper sleep, so why am I writing about it now. 10 months down the line and I have a new discovery? I had this lasting and life changing problem that I couldn’t ever see that I was going to be able to resolve. My new boobs, yes I love them in many ways but being implants with no breast tissue to soften them they are like sleeping with two small balloons filled with sand. They are pretty solid, firm things that if you try to sleep on your tummy do not give or move to the side and are uncomfortable. You find yourself almost balancing, teetering on them pressing into your rib cage. In the beginning I was just pleased I could lie on my side but in the last few months realisation that this is it, the situation won’t be getting any better and I would have to get used to the being perched on these babies if I want to lie on my front had hit me hard and it was a depressing thought . When all of a sudden on Wednesday last week as I was awake at 3.30am getting frustrated I had a rare but bloody brilliant thought. “What about a memory foam matteress topper?”
The following Day I could be found in Ikea face down on a bed checking out their memory foam mattress toppers. I was that crazy lady, yes face down on a bed gently groaning with delight at the realisation that for the first time in 10 months I could lie on my tummy in comfort, blissfully unaware of the solid boobies I have attached to my front. As the memory foam gave way and moulded around my body it gave way to my implants; un-bloody believable. Whoever came up with this stuff is a genius and should be given a medal. I almost fell asleep, if it hadn’t have been for other people looking at the bed frame I was on I would have been there for hours.
I didn’t purchase one from ikea there and then as I had no idea what size bed we have but by Saturday morning the one I purchased from John Lewis was ready for collection. It was collected un wrapped but then had to be left for 24 hours to recover from being vacuum packed to within an inch of its life, as flat as a pancake. Tonight the memory foam topper was added to our mattress and OMG it is heaven. Like Sleeping on a white fluffy cloud of cotton wool. Why didn’t I think of this sooner. I almost didn’t want to fall asleep. I just wanted to wollow in the bliss I was in. Waking in the night now as I do almost every night I won’t care as I just have to think of the comfort I’m in and I smile. I love you memory foam. My new best friend.
I have just looked it up and I have NASA to thank. Those clever people at NASA. THANK YOU.
I made it! Hip Hip Hooray, Today I had my 100th appointment. Time to celebrate. Sounds rather petty but it was bugging me I had not made it to the 100 mark before the year was out but i can now go in to 2019 happy. That’s one appointment every 2.6 days since i found the lump. WOW that’s crazy.
THE 2.30AM WAKE UP CALL!
Again I find my self awake for goodness sake
Ungodly time in the night, pitch black with nothing in sight
I can hear two lots of snoring which is very boring, one is the dog the other the man I snog!!
The tweeting bird can still be heard although it doesn’t seem to help
Counting sheep is so mundane,3 whose idea was it so I can complain
All I want is a little sleep, is that to much of a feat, to sleep while it is dark, so in the morning I can go to the park and play around and have a lark, rather than stumble around, dragging my feet making a moaning sound.
Sleep please come back, I wanted to hit the sack and not come back from lala land until the time planned.
Not forgetting the need to pee like an annoying buzzing bee. The sooner I go in my head I’ll be back in bed. But it doesn’t work like that and it takes ages till I’m sat on the loo doing a…….
Back in bed, Here goes, eyes closed, fingers crossed sleep will come and the night will be done.
December 11th
It’s been a pretty busy time of late and that’s not including all the Christmas fun. Last Wednesday I saw my Consultant Joanna Franks and the great news is that she gave me the all clear. I have to take Letrozole for the next 5 years but I don’t need scans and so on anymore. Sadly the Letrozole is giving me yucky side effects, well if the truth be told just one, achy stiff joins. Some mornings I wake up and can barely move. I feel like the walking dead. Poor Nick has to listen to me grunt, groan and sigh as I manoeuvre myself out of bed. I was told I have to give them 3 months to see if the side effects wear off before they will consider changing them. This week so far joins seem a bit better. If the truth be told I most probably did to much at the beginning of last week that put my hole body into shock…..
As of Sunday I can officially say Palmer Towers is fully decorated for Christmas. Tree was purchased very early Sunday morning in Columbia Road. Always a bit of an adventure, last year it snowed when we went and we were lucky to get home as the roads were like ice rinks, this time we ran out of petrol. I can’t remember the last time I ran out of petrol, most likely in the 80’s when I had my first Beetle. Back to Sunday’s story, thankfully Saint Jenny Taylor came with us and while Dolly and I stayed in the car with the tree
She and Nick went in search of petrol. Thank goodness it was a lack of petrol as Nick was thinking the worst….. Finally got home and can say this year is the first year we have been able to put the fairy on the top without a ladder. Hooray!
Noah took it upon himself to say how he wanted the tree to look, so for the first time I think in my life the tree is only white lights and red, white and silver decorations. Makes me twitch a bit to look at it as there is NO pink anywhere to be seen but it does look good. Please don’t think Noah did it all, tinsel placement was his then he lay on the sofa with Dolly (their normal position) and directed Nick and I !!!!
Last night I watched on BBC iPlayer the program The Truth About the Menopause. Fascinating and informative showing advances to understanding it and medicines. What I came away from it thinking was I wanted to say my view on HRT, cancer and me. So here goes…..
At the age of 40 I began to feel the effects of the menopause, after living with them for at least a year (I watched my Mum for decades live through trying to come off HRT so was adamant I would not go on it.) I went back to my GP and started on HRT. For 11 years I took HRT in the form of patches and LOVED it. It was my Prozac and I know it made my life bearable. Without it I think I would have killed someone and be divorced by now. Even with my diagnosis this year and everything I have been through if I could have my time again I would still take HRT. I always said I would rather be happy and not suffer. 11 years of normality, no flushes, good nights sleep and happiness. I am still here, you can’t get rid of me that easily and with the side effects of all the treatments I have had, one of which being hot flushes it’s made me realise what HRT did for me. Last night it was 2 flushes that woke me, some mopping of my brow, neck and chest and thankfully back to sleep pretty quickly. Some nights I am awake for 2 hours and loss of sleep is dreadful, equalling loss of energy during the day therefore loss of jobs done, sometimes grumpiness and fun had. Again a reminder of what for 11 years of HRT has spared me.
What I am getting at is that even with HRT and both my cancers being oestrogen positive I would do it again. One’s state of mind is so important as is quality of life.
I7th November.
I didn’t expect to feel the way I did as I walked out of 81 Harley Street yesterday morning but boy I felt elated, ecstatic, excited and frigging over the moon. For the first time in 7 months I have not had anything hanging over me. There has always been the next step, phase, treatment to go. Firstly the operation, then chemo, then waiting for my hair to fall out and then radiotherapy. Now with my hair growing back and treatments over I can seriously look forward and not stay in limbo Hell. I found myself dancing and jigging around the kitchen when Nick came home from work singing a wee song about not going back and then proceeded to make a good dent in a rather nice bottle of white wine ( Grannie Annie Lemonade!)
Sadly it’s not over though, and everyday I will continue to have a reminder of what myself, my family and my lovely friends have gone through. Twice a day I have to continue putting the doublebase gel on the area I had the radiotherapy ( I do both sides as I have to look after the scars on both boobies still). The skin will continue to react for a least another week although radio is over, then it will go from pink and sunburnt feeling to brown, maybe dry and most probably peel. A constant reminder for some months to come. I have also been given Aloe Vera to put on the pink, itchy rash that is occurring to sooth it. Then there is the sage tablets and evening primrose oil I take twice a day to help with the hot flushes, the Letrosol ( anti cancer drug) I take once a day with the side effect of hot flushes!!!, and finally the prescription toothpaste the dentist told me to use last week. After brushing my teeth I must not rinse my mouth out or eat and drink for at least an hour but preferably 2-3 afterwards. That means I have to make sure I’m not hungry, thirsty or haven’t forgotten my pills. I might still have two minor operations BUT I have no more treatments and my hair is growing back which are two bloody good reasons to be Happy.
To celebrate yesterday Doramy my lovely sister in law came to meet me, we did some browsing the shops, Liberty’s Christmas department in particular where she brought me a decoration to mark the day and then I managed to buy the craziest most silly pair of beautiful stunning ankle boots, with more than a little encouragement from Doramy. Watch my feet people they’ll be out and about with the festive season coming!
Normality, well my normal can return, walking the dog in the rain and get sewing again. Got animal print jackets to make and sell. Torbagz is back!!
UPDATE SECTION:
Appointments, 93
Hair growth: