14th October
It’s been a while I know since I last wrote a blog. All is ok it’s just been rather busy one way or another.
As i write this i am sitting on a plane at Marseille Airport on my way back from an amazing, relaxing, silly, happy, eaten my weight in bread and cheese, drunk rose wine to the point i have no blood left in my body, danced and sung to great songs and laughed till my sides hurt, not forgetting the conversations!!! But now heading back to reality and the nest step in this shitty battle.

That’s me heading home!
Now that chemo is over the appointment activity has begun again. Still seeing the physio regularly, seen the plastic surgeon, the consultant about my radiotherapy, had planning for my radiotherapy which entailed another CT scan, loads of measurements and two small tattoo dots on my chest area, my GP, Accupuncture appointments to help with the hot flushes and sleep and a lovely doctor who specialises in lymphodemia so I could be measured and fitted for some very unattractive compression sleeves which I have to wear before, during and after all flights from now onwards. All I can say is thank god the the compression sleeves are flesh coloured as they are not the most attractive or comfortable things. But I’ll do anything to prevent getting lymphodema as once you get it is doesn’t go.
There have been some rough/ tough times of late. I had a strange sensation in my throat/ oesophagus like I had swallowed a boiled sweet and it had got stuck. It turned out this was yet another side effect of chemo no one had mentions, a fungal infection that with some drugs went after a few days. Only to be followed by a cough that involved unpleasant ( let’s call it “stuff”) being brought up. So antibiotic were prescribed and that finally cleared up. I went through a phase while this was all happening of being grumpy and cross. Just wanted to feel better while things kept being thrown at me. It was during this stage I saw David Floyd the plastic surgeon and was a stroppy moo, moaning away to him about the state of my boobs. God i was in a foul mood that day! I am lucky to be here and can hear Nick saying as much to me.
17th October
I’m back!!! I feel so rested and dare i say it back to feeling like me again. Sadly i know this feeling won’t last long but it’s nice to go into Radio not feeling chemo tired.
Radiotherapy has now started. As I write this i am sitting in the car waiting to go in for session number two. Yesterday after a lot of moving me about to get me into the exact position, down to the millimetre and practicing the breathing i have to do while the radiotherapy takes place, they finally could get on with it. It took so little time to do i couldn’t believe it was over. Saying that i have 14 more sessions which is soooo Boring.
By the end of today, i will have had my 70th appointment since this all started. Got Physio after Radio to try and prevent my skin, scar tissue from hardening in the area where the Radio is taking place. It would be so nice if there was just one treatment that did not have a side effect.
Onto brighter things, on the 28th September my friend Sarah and I held a Macmillan Coffee morning which was very well attended, lots of cake were eaten, tea and coffee drank and with the generosity of everyone who came and even those who couldn’t we raised over 1100 pounds. THANK YOU TO EVERYONE. I was touched you all came and we raised so much for such an amazing charity. Since my diagnoses everywhere i have been are these little booklets by Macmillan covering every type of cancer, stages, side effects, help with many topics you wouldn’t even think about, basically answering any question you might have. I have brought many home over the months and have found them great. Thank you Macmillan for being there for us all.
I did lie in bed last night not being able to get to sleep as I couldn’t get comfy with these, let’s just say implants, in me and just wanted it all to be over. Yes chemo is over but bloody hell there is so much else to do. I even have an appointment for 2020 for a treatment. So please I don’t want to hear from anyone “It’s almost over” as it is NOT! Enough said, moving on. I could bang on for ages but you’ll all get bored.
Last night my good friend Sue came over with her hairdressing scissors and did what i should have done weeks ago which was to cut off the remaining hair that hadn’t fallen out. It just stuck straight up in a ridiculous manner and when i had a flush and it got a bit wet i looked like a chicken that had just hatched. No not attractive at all! Now it’s all gone and i am basically all bald my emotions to my hair are good. It was a shock when i first saw it, (and i know my Mum and most probably Dad will hate it and be sad) but this morning i felt uplifted, positive about it knowing that my hair is growing back slowly and by Christmas i should have an even covering. Will it be brown and curly, grey, blonde ( in my dreams) but I don’t care. It will be hair!
Better go, appointment to go to. Xx
Great to hear you are good…. i have missed your updates…. well done on the morning tea a great effort and lots of fun i can imagine. Your trip away sounded a real drag!!! Having to eat and drink so much….tough….. im in darwin with steph for a few days and loving being with the kids. Hope you have fun with pete and co. Love to all
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